It’s just a part of being a woman, suck it up. Such comments probably many women have heard in their life when dealing with pain. Is pain even normal? With the medical field being based on men, many female chronic diseases are brushed under the carpet. One of them is endometriosis. Even being as common as diabetes and affecting one in 10 women, lack of research and advocacy has left many women in the darkness.
With thousands of women suffering from endometriosis, patients are striving for justice. Yet, three different European countries are at different stages of the fight. Two journalists from UK and Kosovo aimed to analyze why endometriosis is still taboo. In collaboration with Endo Talks CZ, they discuss how women activists are fighting for a change. See what they found in video or read more information in article.
Urtė Fultinavičiūtė, Lithuania/UK
Misha Lebeda, Czech Republic/Belgium
Donika Gashi, Kosovo
Project was realised via PressStart sponsored by European Commission.
Who are we
ENDO Talks CZ is the first patient organisation in Czechia oriented on endometriosis. We are part of the Patient Hub under the Czech Ministry of Health, National Association of Patient Organisations and World Endometriosis Organisation.
Endometriosis affects the lives of one in ten women and their families. We help them take back control by offering support and information to help them understand this chronic condition.
- AWARENESS campaign to inform the large public about endometriosis and become the best source of information on endometriosis. For all of society to fully understand endometriosis and its impact.
- SUPPORT people with endometriosis diagnosis by providing relevant information, individual support and help to create support communities across the country.
- ADVOCACY in order to change the czech system and allow for everyone to have the right to fast, appropriate care, support and treatment. And to be supported in this mission by czech authorities.
More about our activities in czech language here.
Beginnings - ONLINE ENDO MARCH 2021
We’re a very small organisation running mainly on volunteering and via donation
Expat in Germany
ENDOTalks.cz, z.s. is the first Czech patient organization focused on endometriosis founded in 2021.