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Endometriosis is one of the most common chronic diseases affecting fertile women. The most common symptoms are heavy bleeding and painful periods. However, the lack of information and resources means that it can take years to be diagnosed with endometriosis and more than often women get misdiagnosed with other conditions.

Two journalists in the UK and Kosovo aim to analyze why endometriosis is still taboo. In collaboration with Endo Talks CZ, they will discuss how women activists are fighting for a change.

This project is launched by PRESS START and co-funded by the European Comission (DG CONNECT).

Help us in our effort by supporting our crowdfunding. We can not make it without you!

Who are we

ENDO Talks CZ is the first patient organisation in Czechia oriented on endometriosis. We are part of the patient hub under the Czech Ministry of Health.

Endometriosis affects the lives of one in ten women and their families. We help them take back control by offering support and information to help them understand this chronic condition.

Our mission

  • AWARENESS campaign to inform the large public about endometriosis and become the best source of information on endometriosis. For all of society to fully understand endometriosis and its impact.
  • SUPPORT people with endometriosis diagnosis by providing relevant information, individual support and help to create support communities across the country.
  • ADVOCACY in order to change the czech system and allow for everyone to have the right to fast, appropriate care, support and treatment. And to be supported in this mission by czech authorities.

More about our activities in czech language here.

Beginnings - ONLINE ENDO MARCH 2021

Cooperation

We have also cooperation with young researcher in Oxford University oriented on endometriosis Magdalena Marečková (web, video).

If you want to cooperate with us, feel free to contact us

Donate

We’re a very small organisation running mainly on volunteering and via donation

Contacts

Misha Lebeda

Founder and CEO

Expat in Belgium 

misha@endotalks.cz

Alice Řezníčková

Volunteer

Expat in Germany

alice@endotalks.cz

ENDOTalks.cz, z.s. is the first Czech patient organization focused on endometriosis founded in 2021.

ENDOtalks

Praha
Radhošťská 9
Praha 3
130 00
IČ: 09937773
ČÚ: 111120216/5500